27 March 2019
ELECTION OF THE IAHCRC SCIENTIFIC COORDINATORS FOR THE BIENNIUM 2019 - 2020
Last March 27th 2019, during the General Assembly of the members of the IAHCRC Consortium, the results of the election of the Scientific Coordinator and Deputy Coordinator for the biennium 2019 – 2020 were communicated.
Prof. Mohamad Mikati (AHC Clinic at the Duke University School of Medicine, Durham, NC USA) officially settled as Scientific Coordinator of the IAHCRC Consortium, and Prof. Alexis Arzimanoglou (Neurology Department at the University Hospitals of Lyon, France) officially settled as Deputy Coordinator.
Many sincere thanks to both of them for accepting to remain as Scientific Coordinators, to continue their precious action in making the Consortium more stable and more and more effective.
With their scientific coordination and the contribution from all its members, the IAHCRC Consortium will surely play a key role in these next two years, for the progress of the collaborative research on AHC and all the ATP1A3 diseases, towards the final goal of an effective treatment and a better care for the patients.
During the General Assembly, Prof. Mikati gave an update presentation about the OBSERV-AHC Study; the IAHCRC Data Manager Rosaria Vavassori presented an update about the IAHCRC-CLOUD Platform, currently used for the data collection for the OBSERV-AHC Study and for other Studies and Projects already planned.